Things have been going good... Mike has been feeling well and has been responding to treatment. His platelets and blood counts have been stable which is always good. We have been very busy. Sometimes this is a good thing but other times it makes it feel like time is going by too fast. One thing that is a constant battle is the depression that Mike and I both have. It comes and it goes. Sometimes you don't want to get out of bed and other times it stops you in your tracks and weighs you down. Depression is expected with a cancer diagnosis so we do what can to cope with it.
October 3rd we will be having the 2nd Annual Michael Howell Softball Tournament. Again, we are pleased to say that we have reached our maximum amount of teams, we have many great raffle items that have been donated as well as donated goods to sell. We hope that people will come out to see us even if they are not competing in the softball tournament! We have tons of great raffle prizes. We will be selling food, bracelets, t-shirts, 50/50 raffle tickets and more!
Recently my friend Pam and I created a facebook pancreatic cancer group. The group is called Young Pancreatic Cancer Patients and Caregivers. In only a few short days we are up to 81 members! This group was created for young pancreatic cancer patients and/or their caregivers that are between the ages of 20 and 40. This group was also created to be a support group for young people that have been affected by this disease.
Pam & I were brought together because of this nasty disease that our husbands shared. We live over 600 miles apart but have been able to meet and spend time together many times. We have been each others biggest support system. We hope that through this group we will be able to give/provide guidance, support, advice, and share success stories to other young pancreatic cancer patients and their caregivers.
The median age of PC is 71...
As Pam & I have found out there are not many resources or support groups for young pancreatic cancer patients and caregivers.
We put an age on the group in hopes that young people 20-40 yrs old battling this disease as well as their caregivers could find a support group that best fits them. However, anyone at any age are welcome to join!
Tonight we had therapy with Ava. It went well we worked on a giant dream catcher to help catch her bad thoughts in the middle of the night. She struggles to stay asleep some nights so her therapist recommended we make the dream catcher to help her feel more comfortable. After therapy we went out to eat for our usual family dinner night.
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| Ava & her dreamcatcher we all made |
A few weekends ago we participated in the Marino Donnelly Foundation Cornhole Tournament. We had a great time. We were able to meet other Pancreatic Cancer survivors and talk to other caregivers. Mike had treatment the day before but he still did great. I was proud of him for getting out of the house and participating. The final two teams came down to Mike & I vs my brother. Charlie and his friend Chris. My brother and Chris won! Overall we had a great time and was grateful for our families coming out to support us. Here are some photos from the event.
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| Jackie, Charlie (my brother), Chris, & Joe |
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| Me playing against another PC survivor |
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| Chris & Mike playing |
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| Cornhole Participants |
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| Mike & I <3 |
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| Mike's Fight Team |
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| Pancreatic Cancer Survivors |
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